Another dr visit, another possible hospital stay...

I don't know what it's like to take my child to the doctor without having to pack enough clothes for a 2 week stay. People really cannot understand that unless they've been there. Our CF doctor is 100 miles/2 hours away...as is the hospital. So when we have a dr visit, we can't plan on a "normal" visit and go shopping and have a time of fun afterward. We pack our clothes for a 2 week stay. We are in limbo until we leave the dr's office. We don't plan on shopping or having fun until after we hear that no hospital stay is needed. For 2-3 days before the appt, I am doing laundry making sure we have enough clothes for 2 weeks. We have to pack books, laptops, games, movies, ipods. We have to LIVE in the hospital 100 miles away from our home for at least 2 weeks....sometimes longer. Not only do I, as a mom, have to make sure my things are packed but also Lezly's things are packed. I have to make sure my husband has enough meals for the 2 weeks I'm away. I have to make sure the animals are taken care of. I have to make sure the house is clean and taken care of. I have to make sure the bills are taken care of. I have to make sure I have money for my meals while I'm at the hospital with Lezly...but I also have to make sure my husband has money for gas to get to and from work. The month of the dr visit, we can't make plans for that entire month until we know whether a hospital stay is needed. No, I don't know what it's like to take my child to the doctor for a "normal" visit. Nothing about our LIFE is "normal"...but that's okay. I'm not sure I could handle "normal"... So, now I have 4 days to get it all together. To do laundry. To pack our things. To prepare my house. To prepare myself for another possible hospital stay. *SIGH*