We fight....

I hate CF. I hate it so much!! I hate what it's done to our family. I hate what it's taken from us. I hate what it's still taking from us.


We fight it and fight it. We've fought it for over 25 years and yet where has it gotten us? We fight it....and for what? For us to lose our son? For us to go into the hospital every 3 months? For us to get a Port...and probably a feeding tube? For us to have maybe 1 good day out of the week?


I hate CF and I hate what it did to my son and I hate what it's doing to my daughter!


Yet we continue to fight. Even on days we don't feel like fighting. Days that would be easier to give up than to fight. But we fight. With all we've got. We fight.


We're so tired.....but we have to fight. Because if we don't fight.... ='(